Patient Advisory Council members have been crowdsourcing their wisdom, tips, and tricks about IBD topics that are timely and important to them. Using their insights, they have been developing brief, helpful one-pagers that are then reviewed by various members of the ICN community such as dietitians and psychosocial providers. Take a PAC Moment to check out new patient-developed resources!
The PAC, in partnership with ImproveCareNow, creates resources for young people to be educated and empowered. By sharing ideas, tips, and resources, we become a force of knowledge against IBD.Â
@ICNPatients share tips, tricks and motivation for tending to your hydration, and ICN registered dietitians weigh in with important information about the use of electrolytes. Download Let’s Talk IBD + Hydration
@ICNPatients share their favorite ways to practice self-care and cope during IBD flares; with insights from the ICN SWAP (Social Workers & Psychologists) group on rest and symptom tracking. Download Let’s Talk IBD + Coping with Flares
PAC Moments is a series of short informative stories from @ICNPatients aimed at raising more awareness of IBD and sharing actionable info & tips for life with IBD. We hope you’ll share these with others and ask them to take a PAC Moment to learn from patients 💚💙
💫 Get #InTheLOOP with PAC Moment stories on the ICN blog >>
💡 Everything we do in ImproveCareNow is magnified by the efforts of thousands of improvers! No action is too small; here are some ways to get started:
💚 Join the Patient Advisory Council (patients with IBD who are 14+)
💙 Join the Parent/Family Advisory Council (parents/caregivers of young people with IBD)
💚 Participate in our Current Research Opportunities (subject to eligibility)
💙 Support our work with a tax-deductible general donation or donation to the Richard B. Colletti Family Fund
💚 Subscribe to blog updates to stay #InTheLOOP with our IBD stories
💙 Download, use & share our free, co-produced IBD resources
💚 Connect with our welcoming & supportive pediatric IBD community and receive IBD resources, community stories, and ICN updates & opportunities