Crohn's Disease

Learning How Engagement Impacts IBD Outcomes With The CLARE Study

If you are a young person living with Crohn’s disease or ulcerative colitis, or a parent/caregiver supporting one, you know that...

What I Wish Every Current and Future IBD Mom Knew – lights camera crohn’s

This month marks nine years since I became a mom. Nine years since my life split into a clear before and after.Before motherhood.Before learning...

IBD Kidz is a virtual support program for pediatric IBD patients

As PAC member, Leela, wrote in her introductory post to the ICN blog, "It makes me...

The Magic of Connection: Why Peer Support is Powerful

Parenting a child with a chronic illness like Inflammatory Bowel Disease (IBD) can feel isolating for...

What Students and Families Need to Know – lights camera crohn’s

Transitioning to college with Inflammatory Bowel Disease is both an academic and healthcare milestone. IBD is an unpredictable,...

Using writing as a form of advocacy to raise awareness for pediatric IBD

Meet Desiree and read her story about the role stories and storytelling have had in her...

Nick Zecchino’s Comeback and the Birth of Carna Nutrition – lights camera crohn’s

In 2016, Nick Zecchino was living the dream. After years of relentless dedication, he signed a Division I...

Bringing Patient Voices to Capitol Hill

It’s been nearly a decade since the first time I spoke as a patient advocate within...